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Community & Civic Life

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Disability NEWS – July 4, 2018

Disability NEWS Banner

Above is the Disability Program NEWS Banner.

July 4, 2018

In This Issue…

  • Oregon’s SCILs want to hear from Oregonians who experience disabilities to improve state plan
  • Oregon Spinal Cord Injury Connection provides support groups for the community
  • Oregon Medicaid Advisory Committee seeking new members
  • NWDSA’s Social Justice Youth Camp to be August 3-5 at PSU
  • Give your feedback on the DRO Disability Community Survey by August 30
  • Opportunity section features two different opportunities to work on disability issues
  • September 9th Affect Conf is a 2-day event about making the future accessible
  • Visit Disability Program Facebook page for more news, event postings

Oregon’s SCILs want to hear from Oregonians who experience disabilities to improve state plan

Oregon’s State Independent Living Council and Network of Centers for Independent Living (CILs) are responsible to help prepare a statewide plan for Independent Living services. These services help people with disabilities find information and resources, and achieve their goals through peer mentoring. 

What these organizations learn will help to improve our state plan and better advocate for the needs of people with disabilities. 

Please take our brief survey! The survey is open until July 30th. Either click on the following link or type it into your browser. 

Need an alternate way to take the survey? Contact the State Independent Living Council for surveys by phone or other formats. Call 503-945-7015 or e-mail  

Oregon Spinal Cord Injury Connection provides support groups for the community

Two support groups are available for those who live with a spinal cord injury and also for family, friends, partners, and caregivers every other month.The Oregon Spinal Cord Injury Connection’s (Oregon SCI) separate support groups will meet simultaneously on July 12 from 6:30 to 8 p.m. at Legacy Good Samaritan Hospital (Good Sam) at 1015 Northwest 22nd Avenue.

The SCI Support Group for those who live with a spinal cord injury is being held in hospital’s chapel on the third floor of the hospital. The support group for family, friends, partners, and caregivers occurs in the hospital’s Wistar Morris Conference Room on the hospital’s main floor.

Oregon SCI’s vision is to build a vibrant community-based support network in which people living with spinal cord injuries can thrive. It leverages the social capital inherent within the community to promote education, health, advocacy, self-reliance and awareness. More information about this organization is available on the Oregon SCI website, including an events calendar, blog, resource information, and more.

Oregon Medicaid Advisory Committee seeking new members

New members are being recruited for Oregon’s Medicaid Advisory Committee (MAC). The committee, a federally mandated body, advises the Oregon Health Policy Board, the Oregon Health Authority and the Department of Human Services (DHS) on the operation of Oregon’s Medicaid program, the Oregon Health Plan, using a member and community lens. Some of the MAC’s recent work includes:

  • Developing a standard definition of social determinants of health and recommendations for how CCOs can address social determinants of health in the next stage of transformation (2018)
  • Developing guiding principles of Oregon Medicaid (2017)
  • Developing a framework on oral health access in Oregon (2016)

MAC members are appointed by the Governor. Members must commit to regularly attending MAC meetings (eight times a year in Salem, with the occasional opportunity to attend by phone/webinar). The committee and Governor are particularly seeking new members in the following areas:

  • Individuals from all parts of the state and from diverse backgrounds, including people of color, LGBTQ individuals, women, and people with disabilities
  • Individuals covered by the Oregon Health Plan (OHP), including one OHP member with a disability
  • Members of health care consumer groups that include Medicaid recipients such as a coordinated care organization (CCO) consumer advisory group (CAC)
  • A member of one of Oregon’s federally recognized tribes
  • Persons associated with health care organizations, including providers of all types, but especially behavioral health and traditional health workers (like community health workers)
  • Members of the general public.

Anyone interested in helping to improve Oregon’s Medicaid program through the work of MAC, may contact Margie Fernando by phone (503-373-1927) or e-mailing to request an application. Applications are due by August 15, 2018.

NWDSA’s Social Justice Youth Camp to be August 3-5 at PSU

Individuals aged 16 to 25 years old may learn to find their unique artistic voice and message at the Northwest Down Syndrome Association’s (NWDSA) Social Justice Youth Camp being held August 3 through 5 at Portland State University (PSU). It will be three days of interactive workshops exploring numerous social justice topics.

Participants can explore creative expression, activism, and advocacy while being on PSU’s campus. They will lodge in dorms, eat in the dining halls, experience classrooms and student centers, and explore downtown Portland.

The camp is designed to be interactive and accessible to all. Campers will be required to actively participate in workshops led by experienced social activists and artists. Activities will range from writing and drawing to movement and music. To ensure campers' engagement throughout the camp, accommodations and/or supports will be made according to each individual’s needs.

At the closing reception on Sunday, August 5th, family and friends are invited to view the campers’ projects. Light refreshments will be provided and the youth will be picked up following the reception. To apply and learn more about the Social Justice Youth Camp, visit its webpage.

Give your feedback on the DRO Disability Community Survey by August 30

Disability Rights Oregon (DRO) want to hear from Oregonians with Disabilities about their needs. This input shapes DRO’s decisions about how to best focus its resources in the coming year, and impacts the goals and priorities of the organization. A survey has been developed and posted online with a deadline of August 30th to participate.

Participants in this survey can share their feedback through this 10 to 15 minute survey by clicking this link. Anyone who needs an alternate format to complete this survey, may contact DRO at 503-243-2081 or 800-452-1694 or emailing to The survey is also available in Spanish: Encuesta sobre lo que la Poblacion Percibe acerca de Disability Rights Oregon 2018.

Every year, DRO gathers feedback from Oregonians about the needs of people with disabilities. Its current priorities are available at


Program Coordinator at Oregon Health Equity Alliance (OHEA)
The OHEA is looking for a full-time program coordinator to provide administrative support for grants and programs; program and administration support for Community Powered Change, and other duties. More information about the position, including how to apply, is available on OHEA’s Facebook page.

Registration Unit Office Specialist with the Oregon Health Authority (OHA)

The OHA’s position is working with a team of public health professionals to ensure vital records are processed quickly and accurately. It entails providing support for the registration and amendment of vital records while interacting with staff members, community partners, medical examiners, funeral services practitioners, and county registrars and clerks to obtain and verify the accuracy of vital records. Detailed information about qualifications, desired attributes and application instructions may be found on the position announcement web page.

September 9th Affect Conf is a 2-day event about making the future accessible

Affect Conf (pronounced “effect”) is a two-day event with a dash of volunteering that examines the work, culture, and design of social change. Returning for its third year on September 6 through 7, Affect 2018 will feature a keynote from disabled activist and content creator Annie Segarra, who’ll be talking accessibility beyond ramps, captions, and audio descriptions, as well as her The Future Is Accessible campaign. Other speaker topics include making activism more accessible; grassroots organizing strategies for healing, transformative, and housing justice; and mental health and treatment for people of color. 

Affect’s program includes a day and a half of presentations and a half day of service with local nonprofits. For the latter, the event organizers are currently looking for organizations that could use a group of 10 to 15 helping out on the morning of Friday, September 7 (please email Previously, Affect attendees have taken on projects for CymaSpace, Meals on Wheels, and p:ear. 

The conference will have two ASL interpreters, live (real-time) captioning, physical access lanes, all-gender restrooms, and onsite childcare. Go to the event’s website to learn more about the topics being presented, schedule of activities, useful information for attendees and how to sign up to attend.

Visit Disability Program Website and Facebook page for more news, event postings

The Office of Community & Civic Life Disability Program Facebook page features daily postings of news, videos, events and issues of interest to people with disabilities.

The Disability NEWS is created and distributed twice monthly on the first and third Wednesdays by the City of Portland’s Disability Program in the Office of Community & Civic Life The NEWS, including back issues, is also available in the program’s website for viewing at this link.

To update your contact information, if you wish to submit information for the newsletter or if you know someone who would like to receive the newsletter, please email Events submitted will also be noted on the Disability Program Facebook page and featured on ONI Events calendar's list of Disability Events.

Please note: This information is available for downloading in an e-publication format for reading on a tablet, smart phone, digital reader or computer.