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Disability NEWS – July 18, 2018

Disability NEWS Banner

Above is the banner for the Disability Program NEWS.

July 18, 2018

  • Visit to Fairview Center demolition inspires social justice video to break down systemic barriers
  • Oregon’s SCILs want to hear from Oregonians who experience disabilities to improve state plan
  • FACT Oregon’s 2018 All Ability Tri4Youth will be held on August 11th
  • Disability Rights Storytellers Fellowship provides opportunity to participate in digital media storytelling
  • NWDSA’s Social Justice Youth Camp to be August 3-5 at PSU
  • Workshops for Deaf Interpreters and Hearing Interpreters are scheduled August 21-25
  • MSAA Lending Library program offers large selection of resources for persons with MS
  • NWDSA’s Annual Buddy Fest NW will be September 22 and registration is open now
  • Visit Disability Program Facebook page for more news, event postings

Visit to Fairview Center demolition inspires social justice video to break down systemic barriers

Youth with intellectual/developmental disabilities (I/DD) and their peers without disabilities are growing up with new and bold dreams. Oregon’s Fairview Center, an institution for people with I/DD was closed in March 2000, marking an end to residential facilities of this type in Oregon. In 2002, the governor issued a formal apology for the human rights violations that occurred there. Even though institutions like Fairview Center still exist, in all but fourteen states in the United States, today’s youth have high expectations about the inclusion of people with intellectual/developmental disabilities in their schools and communities. 

Just a few months ago, in March 2018, the remaining buildings at Fairview Center were demolished. Self-advocates Eddie Celt and Dan Jarvis-Holland, along with Dan's family, went to Salem, Oregon to witness the historic moment. Dan and Eddie walked the grounds of an institution that could have been their home had they been born just a few decades earlier and is a significant part of the history of people with I/DD. Unfortunately, residents at state-operated institutions still face neglect, abuse, and isolation today.

A video was created by the Social Justice Youth Program (SJYP) , a project of All Born In (ABI), inspired by Dan & Eddie's visit to the Fairview grounds. The film debuted at the 13th annual All Born (in) Cross-disability Best Practices Educational Inclusion Conference in April 2018 and awards created from Fairview’s rubble were given to community advocates who are working to break down barriers to disability inclusion. The youth group hopes that as a society we will continue to work toward breaking down the invisible systemic barriers people with intellectual/developmental disabilities face, now that the physical walls are down in Oregon. They ask that the voices of youth be heard, they believe in disability rights, inclusion of people with I/DD in all aspects of life, and disability pride, and they wonder why we are waiting for an end to disability segregation now.

To view the video and learn more about NW Disability Support’s Social Justice Youth Program visit www.abicommunity.org/programs/youth_program/

Oregon’s SCILs want to hear from Oregonians who experience disabilities to improve state plan

Oregon’s State Independent Living Council and Network of Centers for Independent Living (CILs) are responsible to help prepare a statewide plan for Independent Living services. These services help people with disabilities find information and resources, and achieve their goals through peer mentoring. 

What these organizations learn will help to improve our state plan and better advocate for the needs of people with disabilities. 

Please take our brief survey! The survey is open until July 30th. Either click on the following link or type it into your browser. https://www.surveygizmo.com/s3/4372224/2018-Needs-Assessment-Project

Need an alternate way to take the survey? Contact the State Independent Living Council for surveys by phone or other formats. Call 503-945-7015 or e-mail oregon.silc@state.or.us

FACT Oregon’s 2018 All Ability Tri4Youth will be held on August 11th

FACT Oregon’s 2018 All Ability Tri4Youth is Saturday, August 11,with opening ceremonies beginning at 9 a.m. The second All Ability Tri4Youth is a fully accessible, all ability triathlon open to youth, ages 8 to 26, with and without disabilities.

The All Ability Tri4Youth is a fun, safe, accessible event with an emphasis on inclusion and community building. From a triathlon course that has been successfully tested by youth to fully accessible facilities, great music, food, and lots to celebrate, participants will create lifelong memories on this special day.

Athletes can participate as an individual athlete, a youth team, or a family team. The options are endless! Interested in learning more? Visit FACT’s Tri4Youth website. Register for the All Ability Tri4Youth here. Questions? Call 503-786-6082 or email triathlon@factoregon.org.

Karen Gaffen will be the guest speaker at the 2018 All Ability Tri4Youth! Karen is the president of a non-profit organization dedicated to championing the journey to full inclusion in families, schools, the workplace and the community for people with developmental disabilities. She successfully swam the English Channel as part of a six-person relay team and also swam 9-miles across Lake Tahoe in 59-degree water to raise money for the National Down Syndrome Congress.

Not participating as an athlete in the Tri4Youth? Not a problem! Come and have fun cheering on the athletes and enjoying the family fun party! FACT Oregon hopes you will join everyone for the daylong festivities where we will have music, food, lawn games and a large family resource fair!

Disability Rights Storytellers Fellowship provides opportunity to participate in digital media storytelling

Rooted in Rights and the American Association of People with Disabilities (AAPD) manage the Disability Rights Story Tellers Fellowship to provide the opportunity for individuals with disabilities to learn and apply skills in digital media storytelling for advocacy. Fellows will connect with media professionals to prepare participants for advanced careers in media production, journalism, online advocacy, or digital design.

The project combines hands-on training in cutting-edge technologies with a strong foundation in developing each individual’s voice and using story-driven videos in advocacy. To apply for the 2018-2019 Disability Rights Storytellers Fellowship, visit aapd.com/disability-rights-storytellers/. The application deadline is Tuesday, September 4th, 2018.

Upon admission to the program, Rooted in Rights will send a pre-tested, pre-assembled video production kit to the Fellows. The fellowship kicks off with orientation sessions in which Rooted in Rights creative professionals and AAPD staff lead workshops on the history of disability justice, current policy issues, and the media’s role in the disability rights movement as well as technical workshops focused on video technique, script writing, digital storytelling, basic camera composition, and video editing.

The Fellows will begin using their kit and gain valuable hands-on experience right away. During the 6-month fellowship period, Fellows are expected to write and film two 3 to 4 minute videos. At every step in the process, the Fellows are a part of the Rooted in Rights production team – receiving feedback and guidance while being challenged creatively to make the videos as engaging as possible while also meeting the standards for quality and universal accessibility that all of our video projects demand. The Fellows will have the opportunity to ask questions. Rooted in Rights professionals will be available for one-on-one mentoring. At the beginning of the fellowship, Rooted in Rights will work with each Fellow to arrange a schedule for choosing video topics, developing a production plan, filming, and editing to ensure timely completion of both videos.

View Carrie Wade’s Storytellers’ video, “Running Out,” that discusses paths to success for non-traditional candidates in 2018 and beyond, providing resources for potential candidates. She represents three separate groups (women, LGBTQ folks and people with disabilities) that are underrepresented in politics. This is Carrie’s second video as a Disability Rights Storytellers Fellow.

NWDSA’s Social Justice Youth Camp to be August 3-5 at PSU

Individuals aged 16 to 25 years old may learn to find their unique artistic voice and message at the Northwest Down Syndrome Association’s (NWDSA) Social Justice Youth Camp being held August 3 through 5 at Portland State University (PSU). It will be three days of interactive workshops exploring numerous social justice topics.

Participants can explore creative expression, activism, and advocacy while being on PSU’s campus. They will lodge in dorms, eat in the dining halls, experience classrooms and student centers, and explore downtown Portland.

The camp is designed to be interactive and accessible to all. Campers will be required to actively participate in workshops led by experienced social activists and artists. Activities will range from writing and drawing to movement and music. To ensure campers' engagement throughout the camp, accommodations and/or supports will be made according to each individual’s needs.

At the closing reception on Sunday, August 5th, family and friends are invited to view the campers’ projects. Light refreshments will be provided and the youth will be picked up following the reception. To apply and learn more about the Social Justice Youth Camp, visit its webpage.

Workshops for Deaf Interpreters and Hearing Interpreters are scheduled August 21-25

A Deaf Interpreter (DI) Intensive workshop and a Deaf Interpreter/Hearing Interpreter workershop will be held at Western Oregon University in Monmouth, Oregon, the week of August 21st through 25th. There will be three opportunities that week:

  • Deaf Interpreting Workshop (DIW, 8/21-8/25): This will be an intensive five-day workshop for Deaf Interpreters. A new exciting POC scholarship and year long mentoring program is available through Sorenson Communications [https://oad1921.org/sites/default/files/articles-files/dia_people_of_color_initiative_flyer_6.18.pdf].
  • DI&HI Team Terping Workshop (8/25): This will be an all-day workshop where hearing interpreters are welcome and will be free for DIW alumni.
  • Networking Happy Hour (evening of 8/25): This optional structured mixer will be held at a restaurant nearby for all workshop participants to mingle with each other over dinner and drinks.

More information about Deaf Interpreting Workshops is available at http://diworkshops

MSAA Lending Library program offers large selection of resources for persons with MS

For persons with Multiple Sclerosis (MS), the Multiple Sclerosis Association of America (MSAA) offers a comprehensive selection of books and a variety of DVDs that address disease and symptom management, wellness, personal stories from people living with MS, care partner issues, and many other important topics. The program is free and open to everyone.

Participants can borrow one title at a time for up to 45 days. MSAA covers all outgoing and return mailing costs. Once returned, MSAA will process a user’s next request based on availability. Borrowers can use this service continuously, providing each title is returned within the 45-day period and/or no negligence occurs. Users are responsible for lost, damaged, or unreturned items and subject to fines or program suspension.

Borrowers may review the comprehensive listing of available titles and select their top three choices. The request is processed based on order of importance and availability. If the top selection is not available, the selection will move to the second listing (and so on). If all three selections are unavailable, the request will be placed on a waiting list and processed when the next title is available.

More information about the MSSA Lending Library Program and other MS services is available on the MSAA website. The Multiple Sclerosis Association of America is a leading resource for the entire MS community, improving lives today through vital services and support. Founded in 1970, the organization is dedicated to improving lives today through ongoing support and direct services to individuals with MS, their families, and their care partners.

NWDSA’s Annual Buddy Fest NW will be September 22, registration is open now

The Northwest Down Syndrome Association (NWDSA) is hosting its 20th Annual Buddy Fest NW on Saturday, September 22nd, to promote acceptance and inclusion of all people with Down syndrome. The walk brings together participants from Portland metro and Southwest Washington – family members, friends, professionals, community leaders and individuals with Down syndrome.

The 20th Buddy Fest NW promises to be bigger and better than ever at the Moda Center Commons Main Amphitheater in Northeast Portland. For two decades NWDSA as been working to create and nurture a loving and inclusive community for every person with a disability including Down syndrome and they're ready for a party.

This is an opportunity to hear self-advocates and connect with empowered families from across the Portland Metro region and beyond. The event features keynote speakers Cody Sullivan, Matt Schweitz, and James Phillips. Cody Sullivan achieved his personal goals and made history this spring by becoming the first student with Down Syndrome to complete four years of college in Oregon. Cody, Matt, and James will share stories about their inclusive college experience, the importance of embracing everyone’s unique talents and abilities, and how we all have something to teach.

Online registration is available until noon on Sept. 20th. Participants can register in person on the day of the event, but to avoid waiting in long lines, it is suggested to use online registration. Learn more about NWDSA’s Buddy Fest NW and how to register at the event’s website.

Visit Disability Program Website and Facebook page for more news, event postings

The Office of Community & Civic Life Disability Program Facebook page features daily postings of news, videos, events and issues of interest to people with disabilities.

The Disability NEWS is created and distributed twice monthly on the first and third Wednesdays by the City of Portland’s Disability Program in the Office of Community & Civic Life The NEWS, including back issues, is also available in the program’s website for viewing at this link.

To update your contact information, if you wish to submit information for the newsletter or if you know someone who would like to receive the newsletter, please email disabilitynews@portlandoregon.gov. Events submitted will also be noted on the Disability Program Facebook page and featured on ONI Events calendar's list of Disability Events.

Please note: This information is available for downloading in an e-publication format for reading on a tablet, smart phone, digital reader or computer.