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Disability NEWS – October 17, 2018

Graphic of Disability Program News Banner

Above is the Disability Program NEWS Banner.

October 17, 2018

In This Edition…

  • National Disability Employment Awareness Month to be recognized October 25th at City Hall
  • Northwest ADA Center conducting a survey on the ADA and health care access
  • The 18th United Cerebral Palsy Family Conference is October 19-20 in Portland
  • FACT Oregon asking for input on the OFCN Annual Family Survey for 2018
  • NAMI Multnomah announces start of new Advocacy Empowerment Group program
  • NWDSA’s RLC Event: Hopes, Dreams and Possibilities will be November 3rd
  • PBOT holding Open House on its 122nd Avenue Plan for Safety, Access & Transit
  • Visit Disability Program Facebook page for more news, event postings

National Disability Employment Awareness Month to be recognized October 25th at City Hall

Portland Mayor Ted Wheeler will read a proclamation recognizing October as National Disability Employment Awareness Month (NDEAM) on the afternoon of October 25th in council chambers at City Hall, 1221 Southwest Fourth Avenue. Observed each October, NDEAM celebrates the contributions of workers with disabilities and educates about the value of a workforce inclusive of their skills and talents.

At 1 p.m. in the City Hall atrium, prior to the proclamation, there will be refreshments and presentations by city commissioners and disability rights advocates. At 2 p.m., the event will move to council chambers where testimony will be taken, and the Mayor will read the proclamation. Other events commemorating the occasion are planned throughout the day.

Reflecting a commitment to a robust and competitive American labor force, the 2018 NDEAM theme is “America’s Workforce: Empowering All.” The 2018 theme emerged from discussions with organizations that partner with ODEP, including those representing employers, persons with disabilities and their families, and federal and state government agencies. NDEAM dates back to 1945, when Congress declared the first week in October "National Employ the Physically Handicapped Week."

Learn more about the origins and evolution of NDEAM and other important events in disability employment history on the Office of Disability Employment Policy website.

Northwest ADA Center conducting a survey on the ADA and health care access

To gather data for a study on the Americans with Disabilities Act and Health Care Access, the Northwest ADA Center is asking the community to participate in a survey. The Center is looking to hear from people with disabilities about their experience with the Americans with Disabilities Act and health care access.

The survey is available online and asks questions about experiences accessing health care and about the participant and their disability. The survey is anonymous and will take about 20 minutes. Participants who complete the survey will have the option of being entered in a drawing for a $50 Amazon eGift card.

The Americans with Disabilities Act (ADA) requires that individuals with disabilities and health conditions receive accommodations with respect to access to health care services. Even so, research has shown that this is not always the case. The purpose of this study is to find out what barriers exist for people with disabilities when accessing health care. Additionally, the research is to find out what would make health care more accessible. 

If people have questions or would rather complete the survey over the telephone or online, please contact NW ADA Center staff by email at adastudy@uw.edu or via telephone at 206-744-3609.

The 18th United Cerebral Palsy Family Conference is October 19-20 in Portland

United Cerebral Palsy (UCP) Oregon reports there is a great lineup of workshops and speakers for its UCP 18th Family Conference being held October 19 through 20 in Portland. Several new topics will be presented, like Cortical Vision, and the latest research on medical marijuana for seizures and to treat tone. The conference is at the Red Lion Jantzen Beach Hotel, 909 North Hayden Island Drive.

This conference is unique in its focus and is the only one of its kind in the Northwest. Most of the attendees are parents of children with cerebral palsy and other physical disabilities, as well as professionals who work with them. Making connections with other families is an important benefit of this conference.

The Conference Schedule & Registration Form provide a detailed description of all the workshops and speakers (which may change), as well as the Attendee Registration Form. Online registration is available for families and self-advocates, as well as for professionals. Questions may be emailed to Susan Cushman or by calling 503-467-0322.

UCP Oregon offers direct program service, information, and advocacy for people with cerebral palsy and other disabilities throughout the Portland metro area. The Family Support Department (FSD) assists families of children with cerebral palsy (and disabilities that mimic CP) in Oregon and Washington, offering information and referral, respitality, support groups, and outings, as well as connections to other families.

FACT Oregon asking for input on the OCFN Annual Family Survey for 2018

FACT Oregon wants to hear from families and community partners to take the Annual Family Survey for 2018. The survey is important to the organizations in the FACT Family Network.

Please consider taking a quick, three-minute survey for FACT’s Oregon Consortium of Family Networks Evaluation. Questions may be addressed by reaching out to FACT at 503-786-6082 or emailing info@factoregon.org. The survey ends October 31st. FACT thanks all participants in advance for their participation.

Here are links to take the survey, Family Survey, Spanish Family Survey, and Community Partner Survey.

The Oregon Consortium of Family Networks consists of: FACT Family Network, Families Connected, The Arc of Lane County, Families Engaging and Thriving Together (FEATT), Central Oregon Disability Support Network (CODSN), Creating Opportunities, and Bridging Communities.

NAMI Multnomah announces start of new Advocacy Empowerment Group program

NAMI Multnomah is pleased to announce the start of its new Advocacy Empowerment Group program. This is a group of parents/caregivers of children or adolescents with mental health challenges who are interested in sharing their family's lived experience to help improve NAMI Multnomah’s Systems of Care and advocate for better support for youth and families.

This program will involve parents/caregivers of a child or adolescent who is the recipient of high levels of mental health services through Multnomah County and/or Wraparound services within the last 2 years who are members of Health Share and are ready, willing and able to share some of their family’s stories, barriers and experiences in order to advocate for and affect change.

To join and participate, visit NAMI Multnomah’s online interest list or visit the Advocacy Empowerment website to download a form. The website also offers further in formation about when meetings will be held and other programs that the organization provides. Contact Dana at dana.hafter-manza@multco.us with any questions.

NWDSA’s RLC Event: Hopes, Dreams and Possibilities will be November 3rd

The Northwest Down Syndrome Association’s (NWDSA) November 3rd Hopes, Dreams and Possibilities session will be a fun and interactive session exploring strategies to create a vision for the future with a panel of parents and experts. This free Reciprocal Learning Community (RLC) session is a cross-disability session and designed for parents and guardians of children from age 0 to 5 with a disability and professionals that support them.

The Saturday session is from 8:45 a.m. to 1 p.m. at the Montavilla United Methodist Church, 232 Southeast 80th Avenue. Childcare is available and pre-registration is essential since space is limited. Spanish translation is available with a morning snack, beverages, and family lunch provided.

Presenters are Emily Harris from WISE with Jamie Burch and Maria Rangel of NWDSA/ABI. There will be additional speakers, family stories, resource table and NWDSA updates at this session.

Registration is required and contact Jamie Burch with questions or for more information at jburch@nwdsa.org or call 503-238-0522.

PBOT holding a Public Open House on 122nd Avenue Plan for Safety, Access & Transit

The Portland Bureau of Transportation (PBOT) will have a public open house on Wednesday, November 7, on the 122nd Avenue Plan for Safety, Access & Transit. The event will be from 5:30 to 7:30 p.m. at the Midland County Library, 805 Southeast 122nd Avenue.

PBOT is developing of a plan to identify improvements on Southeast 122nd Avenue, between Southeast Foster and Northeast Marine Drive. It is considering changes to the street cross-section, additional enhanced crossings, lighting, signal changes and more. The open house will provide an opportunity to ask questions and provide feedback on potential improvements.

The overall goals are to increase safety for all, improve pedestrian and bicycle access, and support better transit while balancing needs of freight and other modes. It will also identify improvements to help eliminate serious injuries and fatalities and remove 122nd Avenue from the Vision Zero High Crash Corridor network.

Further information about the 122nd Avenue Plan for Safety, Access & Transit is available on the bureau’s website. This includes fact sheets in English, Spanish, Russian, Vietnamese, Somali, and Tongan. Here is a link to a YouTube video to hear what community members have said about needs on the 122nd Avenue and learn about the plans to make improvements.

Visit Disability Program Website and Facebook page for more news, event postings

The Office of Community & Civic Life Disability Program Facebook page features daily postings of news, videos, events and issues of interest to people with disabilities.

The Disability NEWS is created and distributed twice monthly on the first and third Wednesdays by the City of Portland’s Disability Program in the Office of Community & Civic Life The NEWS, including back issues, is also available in the program’s website for viewing at this link.

To update your contact information, if you wish to submit information for the newsletter or if you know someone who would like to receive the newsletter, please email disabilitynews@portlandoregon.gov. Events submitted will also be noted on the Disability Program Facebook page and featured on ONI Events calendar's list of Disability Events.

Please note: This information is available for downloading in an e-publication format for reading on a tablet, smart phone, digital reader or computer.